Going to Philadelphia!

For those of you who do not know, we are heading to Philadelphia to see a specialist for Andrew. This doctor is going to look at Andrew as not just a boy with Duchenne Muscular Dystrophy, but a boy who may also have something else going on. The doctors around here are summing up all his symptoms into one. But like most of you know, he is not the typical diagnoses. A boy usually is diagnosed between 4-7 years old. They develop normally and then start gradually having issues with stairs and falling alot. Andrew will be 3 April 1st and he is still unable to walk unassisted. He cruises on furniture and mostly he scoots all over on his butt! We have look country and world wide to find a family who's child had DMD and is still not walking at 3 and we have yet to find anyone even close. Hopefully this doctor will shed some light onto our situation. We are all going as we will try to make this trip into some fun with the kids. We plan to go to the aquarium and maybe the zoo. There is also a childrens Touch Museum there so if we have time, we will check that out! We leave on March 12th and come back either the 15th or 16th. Please keep us in your thoughts. Hopefully we will get to see Tony's sister Amy when we are down there. She is only about an hour away!!!