Sunday, April 6, 2008

Fun at the park!

After Andrew's birthday party, Hannah and Julia wanted to have a playdate with there cousins, Gretchen, Lauren and Noah! We went to the park and had a great time! (not just the kids!)

Andrew's Birthday Party!

We had Andrew's party at the fire station on Saturday. It was so much fun! The guys at the station were very nice and full of hospitality. They left twice for a call but other than that they spent the entire time with us! Here are some picture's. Enjoy!

Thursday, April 3, 2008

Look what I can do all by myself!

Tonight Andrew really surprised us!!! Check it out!

View this montage created at One True Media
My Montage 4/4/08

When he was done, he fell on him bum and look at me and giggled. He said "Fun, walking Fun!!" Oh it made me cry!

Happy Birthday Andrew!

Andrew is 3!! Can you believe it? We took him out to the Ground Round because the girls thought it would be fun to have them come out and sing to him. He was unsure but loved his ice cream!!!!

Welcome Home!

We finally got to meet my neice, Cadence. Jon and Holly came home from MN for a week. It was way to short a visit! I have decided that they just need to move home! We all miss them very much and wish they were much closer. This is the first time that all the cousins were together at one place!!! Here are the ten of them. Micaela, Sarah, Hannah, Julia, Briget, Andrew, Kasey, Aidan, Cadence and Lucy!

Welcome Lucy!!!

The day before we left for Philly, my brother and his wife had a beatiful baby girl, Lucy! She is so cute and tiny!

Our appt. for Andrew in Philly!

We love this doctor. It seems like we FINALLY found a Dr. who is willing to help our little man! He spent a lot of time with us as did his team. So the scoop. Andrew is 1 in 1000000. He has a very rare case of DMD. He wants to do more testing on his muscle that is left over from his muscle biopsy. We are unsure what they will be looking for but have a call into him to find out. They also would like us to participate in a study at Columbia University. If anybody would like to read more about it, here is the link. ( )We will be starting Andrew on steroids in the next few months. The doctor does not know how he will react but we will track his progress here for 3 months and then go back down to Philly for a follow up. He had his transition meeting a few weeks ago and he has received a one on one aid for the upcoming school year. That is rare to get in EEE as there is a high teacher to student ratio but they felt he needed it, as did we. We will update you when we get more information!

Aquarium Pictures!

When we were in Philly, we took the kids to the Adventure Aquarium in Camden, NJ. They loved it! Here are some pictures! Enjoy!