For those of you who do not know, we are heading to Philadelphia to see a specialist for Andrew. This doctor is going to look at Andrew as not just a boy with Duchenne Muscular Dystrophy, but a boy who may also have something else going on. The doctors around here are summing up all his symptoms into one. But like most of you know, he is not the typical diagnoses. A boy usually is diagnosed between 4-7 years old. They develop normally and then start gradually having issues with stairs and falling alot. Andrew will be 3 April 1st and he is still unable to walk unassisted. He cruises on furniture and mostly he scoots all over on his butt! We have look country and world wide to find a family who's child had DMD and is still not walking at 3 and we have yet to find anyone even close. Hopefully this doctor will shed some light onto our situation. We are all going as we will try to make this trip into some fun with the kids. We plan to go to the aquarium and maybe the zoo. There is also a childrens Touch Museum there so if we have time, we will check that out! We leave on March 12th and come back either the 15th or 16th. Please keep us in your thoughts. Hopefully we will get to see Tony's sister Amy when we are down there. She is only about an hour away!!!
I will be sending emails out when we get back from Philadelphia about the MDA Stride and Ride! It is scheduled for June 8th at Oakledge Park! Mark your calendars if you want to join our team or possibly start your own. I am trying to recruit new teams this year!!! Also there is a fundraiser coming up soon. Here is the information: MDA Fundraiser: Hockey Game local firefighters and police play to raise money for the MDA. Saturday March 22, 2008 at 1pm. Cairns Arena in So. Burlington, VT. Donation "boot" at the entrance. Call PFFV State Office at 802-652-0085 x108 for questions.
The Burlington Firefighters held a Bowl-A-Thon Sunday night and Monday morning at Champlain Lanes. We were asked to go so they could meet a family that they are helping. Of course, we always jump on the chance. We went and we had a great time. It was so great to meet some of the firefighters! The girls got to Bowl and Cheer lead! Andrew just hung out with his fire hat on! He wouldn't take it off! Thank you to the Burlington Firefighters, especially to Jamie for all the work he does!
A few weeks ago Hannahs school had a Science Fair. We were not going to go because we had spent a few hours up at the hospital that day for Andrews heart appointment. We got home and Hannah said we "HAD" to go because her class did something for the Science Fair. So we ate a quick dinner and off we went! We stayed at her classrooms project the entire time. It was basically a huge "Mouse Trap Game"!