Update on Andrew's Philly Appointment

We finally have a doctor who is willing to look into Andrew's issues. We have wondered for a very long time if "something else" could be going on with Andrew. We have always been told No. But one thing we knew is that he never fit into his diagnoses. Now, he definetly has Duchenne Muscular Dystrophy (DMD) but his weakness doesn't really fit specifically to that diagnoses. See, DMD first affects the pelvic area and down. But Andrew has always had alot of upper body weakness. That is what we first noticed about Andrew. He wouldn't use his arms and he didn't have alot of head control. DMD would act in the reverse. So now we have a doctor that is agreeing that something else is going on. He doesn't like the fact that Andrew has a very weak neck and arms. It would be extremely rare for a child to have 2 genetic disorders, BUT this doctor is finally saying they are going to have to look into that possibilty. So here is where we stand now. Andrew is going to have a full Austistic screening done. He has some attention issures, sensory issures and some OCD issures so they want to test to see if he may be on the spectrum. Even IF that comes back positive, the DR. agrees that there is something else. He isn't quite sure what yet but is having a meeting in two weeks with a bunch of his collegues and Andrew will be on the top of his list of kids to talk about. We are going back to Philly in 4 months. In the meantime if any testing comes up, I will keep you all posted. We are excited to have finally found a Dr. that is listening to our concerns but also we feel like we've been hit by a truck. We just want answers. If you can say a prayer for Andrew, that would mean the world to us! Thank you for all your support!