MDA Telethon

Just in case you missed our TV moment, here is the video they aired during the telethon! Just copy and paste the link below

http://homepage.mac.com/fox44/.Public/MDA/Angolanos.wmv

Andrew's 1st day of preschool!

I knew all summer that this way was coming. I have tried to prepare myself but it was still a very hard day for me, but not Andrew! We got him up and gave him his medicine. We drive him to school in the morning and he takes the little bus home with the other preschoolers. He goes on Tuesday, Wednesday and Thurdays from 7:30-10:45ish. The first day was so easy for him. He went right in and got settled with this aid, who we love! When the bus came around the corner, you could see him smiling and biting his fists (he does this when he gets excited) I got he out of his carseat and he just cuddled up to me! He said "missed mommy"! Everyday since, he does the same thing and says "miss mommy". The last few days he has actually cried when we dropped him off. He recovers quickly but he always makes sure he tells us!

The girls first day at school!

I cannot believe that I have a 2nd grader and a kindergartner! The girls are both going full days now. Its so hard to believe! They had a good first day! It was alittle complicated! Hannah opened her lunch up at snack time and ate her snack and noticed there was no brownie in her lunch. So she thought that for some reason, maybe I put in a brownie in Julia's lunch. She told her teacher so got the wrong lunch and she needed to go swap with her sisters lunch, so she did. The problem was Julia hadn't eaten her snack yet. So when she got Hannah's lunch, she chose something for snack which left her with not much for lunch including no drink! Then some little girl pushed Julia and took a play phone away from her so the little girl and Julia had to talk to the guidance counselor. To top off the day, when the bus arrived in the afternoon, Julia's backpack got stuck so the bus driver (he is new) closed the doors and started to pull away. We waved at the bus driver and he stopped and you could hear Julia screaming. She got of the bus sobbing. She thought he was going to leave! Since then, things have gotten alot better. The girls have started soccer and dance! They are enjoying our busy days!

Update from our Summer!

We had a great Summer. As always, it went by too quickly. One day we decided to take a hike up to the Ethan Allen Tower with the kids. They have always wanted to do this so they were very excited to acutally get to the top! Here are some pictures!

The best gift ever!

My brother Jon and his wife Holly and daughter Cadence came "home" today for a week. It is always so good to see them! Cadence has gotten so big! We met them at the airport and then went to Al's for lunch and then back to my parents for dinner and visiting. I was helping my mom when my brother called me and Tony into the computer room and said he wanted to show us a this website he came across the other day. http://www.jonrileyguitars.com/mda.htm
My brother is the most talented guitar maker ever!I am so touched and honored that he has made this to benefit our little guy! He said he will continue to make one every year and ALWAYS have Andrew's initials on it! This is by far, the best gift I have EVER received. Thank you Jon! I can't even find the right words for you. I love you!

Rain!

Is it ever going to stop?

Update on Andrew...

About two weeks ago we started Andrew on the steroid Deflazacort. This steriod is not FDA approved but is available everywhere else (pretty much) except the US. Our Dr. sent the perscription up to Canada and they order is from Europe. We have to bring him to the dr. every 2 weeks for weight gain, gluscose in his urine and blood pressure. The steroid he is on is to known to show less side effects in boys with DMD. If you would like to read more, here is a link. http://www.parentprojectmd.org/site/DocServer/filename?docID=124
We will be traveling back down to Philadelphia in November for a follow up!

Santa's Village!

We took a day to go to Santa's Village! We didn't get to go last year and the year before we went to Story Land. Both are fun but we like Santa's Village better! My cousins Emily and Adam came and Emily's boyfriend!

Camping pictures!

We love camping but this year was alittle different! It rained EVERYDAY!!! YUK!!! We still had a good time and jumped in the sun when we saw it for more than 5 minutes. We also loved it that this year Grandma, Gram and Barb got to come up and see how we live for a week! Even though they got lost finding us, they seemed to enjoy it! We cooked some hot dogs before they headed home! The kids still are talking about it!!!

Camping for 10 or make that 9 days!

So I was running around the day before we were supposed to be going camping and I was at the eye doctor with Andrew. My phone rings and it's Tony. I answered it and told him I would call him back after they put drops in Andrews eyes. So I called him back and to my shock he says we can't leave tomorrow, he has pneumonia?!?!? I was so confused because he wasn't even sick. I guess he woke up with some pain in his chest the night before and couldn't get back to sleep. He decided he better go get it checked out before we head out camping in the northeast kingdom for 10 days. He was just as shocked as I was. So after I got home from running around, I came upstairs and Tony looked awful. As the evening went on, I knew he has hurting. I decided I was going to call his DR. around 8ish and see what he thought. I did and the doctor said to go to the ER. So we spent the night in the ER. The ER thought maybe he was misdiagnosed and thought he had a blood clot in his lung. THANK GOD that DR. was wrong. They gave him some pain meds and we were able to leave on Thursday afternoon. He is much better now but boy did he give me a scare. I love Tony with all me heart and I don't know what I would do without him. He is the love of my life!